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If I could ask the service providers who have anything to do with disabled children one thing, it would be to not make us have to chase them up.
I am really not great this morning. Yesterday the car broke down.
Imagine you wanted to go away for a romantic weekend with your partner. It's been a while and you've had your ups and downs, so this weekend away is pretty important.
My daughter, like lots of disabled children who I have met, has the drive and determination of an Olympic athlete.
My daughter, despite the severity of her disability, uses the loo. She has a specially adapted seat but needs to be lifted on to it by a strong adult. She is able to indicate when she needs to go, but she is not able to wait as long as the rest of us, so you need to be fairly quick.