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1. I haven't stopped dancing
Get Wokingham, Wednesday 30 November 2011The thing that people always want to know is what happened to my daughter to make her so disabled.
2. How disabled children can enlighten the rest of us
Get Wokingham, Tuesday 20 December 2011I have to say that most people are very kind and as helpful as they can think of being and wouldn't dream of refusing to compromise in order to help make the life of a disabled child and his or her carers easier.
3. When a weekend away is too much to ask
Get Wokingham, Wednesday 01 June 2011Imagine you wanted to go away for a romantic weekend with your partner. It's been a while and you've had your ups and downs, so this weekend away is pretty important.
4. Anger, worrry, pain - but riches too
Get Wokingham, Tuesday 07 June 2011My daughter, like lots of disabled children who I have met, has the drive and determination of an Olympic athlete.
5. When simply going to the loo can be pants
Get Wokingham, Monday 13 June 2011My daughter, despite the severity of her disability, uses the loo. She has a specially adapted seat but needs to be lifted on to it by a strong adult. She is able to indicate when she needs to go, but she is not able to wait as long as the rest of us, so you need to be fairly quick.
6. No workers' rights for carers
Get Wokingham, Wednesday 22 June 2011If I could ask the service providers who have anything to do with disabled children one thing, it would be to not make us have to chase them up.
7. Home safe and sound but what if we weren't so lucky?
Get Wokingham, Wednesday 29 June 2011I am really not great this morning. Yesterday the car broke down.
8. Gawping adults who should know better
Get Wokingham, Wednesday 06 July 2011One of the aspects of her disability that upsets my daughter more than most is the stares we get from other people.
9. It's not just a postcode lottery - it's an age lottery too
Get Wokingham, Monday 18 July 2011If you have a baby born with a disability, then certain services kick in, eventually.
10. Pointless hurdles to essential care
Get Wokingham, Wednesday 10 August 2011One thing that is more annoying that having to go to all the hospital appointments we have is actually getting the appointments in the first place.
