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31. When a weekend away is too much to ask

Get Wokingham, Wednesday 01 June 2011

Imagine you wanted to go away for a romantic weekend with your partner. It's been a while and you've had your ups and downs, so this weekend away is pretty important.

 

32. Anger, worrry, pain - but riches too

Get Wokingham, Tuesday 07 June 2011

My daughter, like lots of disabled children who I have met, has the drive and determination of an Olympic athlete.

33. When simply going to the loo can be pants

Get Wokingham, Monday 13 June 2011

My daughter, despite the severity of her disability, uses the loo. She has a specially adapted seat but needs to be lifted on to it by a strong adult. She is able to indicate when she needs to go, but she is not able to wait as long as the rest of us, so you need to be fairly quick.

 

 

34. No workers' rights for carers

Get Wokingham, Wednesday 22 June 2011

If I could ask the service providers who have anything to do with disabled children one thing, it would be to not make us have to chase them up.

 

 

35. Home safe and sound but what if we weren't so lucky?

Get Wokingham, Wednesday 29 June 2011

I am really not great this morning. Yesterday the car broke down.

 

36. Gawping adults who should know better

Get Wokingham, Wednesday 06 July 2011

One of the aspects of her disability that upsets my daughter more than most is the stares we get from other people.

 

37. It's not just a postcode lottery - it's an age lottery too

Get Wokingham, Monday 18 July 2011

If you have a baby born with a disability, then certain services kick in, eventually.

 

38. Pointless hurdles to essential care

Get Wokingham, Wednesday 10 August 2011

One thing that is more annoying that having to go to all the hospital appointments we have is actually getting the appointments in the first place.

39. Forced to go private for a vital appointment

Get Wokingham, Wednesday 17 August 2011

Finally we have an appointment with the Ear, Nose and Throat Consultant. Though not at the Royal Berks, privately, at the Berkshire Independent.

 

40. The value of talking to those who can't talk to you

Get Wokingham, Thursday 25 August 2011

When you have a small child who is not yet talking, it is vital that you keep the chat going.

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