Amelia's family vow to continue experimental treatmentBy Victoria Smith
May 04, 2012
A family has vowed to continue with experimental treatment in the hope it will cure their three-year-old daughter’s inoperable brain tumour.
Family and friends of the Saunders family have raised more than £160,000 to fund little Amelia’s treatment at the Burzynski Clinic in America, but dad Richard said this week NHS doctors are frowning on the move.
Mr Saunders, who travelled to Texas with wife Chantal and Amelia last month for the first phase of treatment, attended an appointment at a UK hospital last week where doctors are continuing to monitor Amelia’s progress.
He said: “Our plan is to continue the antineoplaston treatment for as long as required.
“We realise this is being frowned upon by the doctors here – but ultimately we are trying the only thing we found that had credible results.
“Days like today are always a bit tricky because we always end up getting the clinical view of what is going on, which is always pretty awful, and we always expect to pretty much feel like the NHS think we are lunatics.
“We got a bit of that, but that is to be expected – we have basically turned down everything they want us to do and done the complete opposite. And so far, I’m very glad we have at this stage.”
X Factor star Danyl Johnson lent his support to the Amelia’s Miracle fundraising appeal on Sunday, April 22, when he appeared at a fundraising gig at The Crown pub in Playhatch.
Amelia and her parents, from Lower Earley, were among the guests at the party.
Former teacher Danyl, 29, who was catapulted to fame after becoming a finalist on the TV talent show in 2009, said: “I got to hang out with Amelia for the first hour I was there. I did not know her or the family before but it was great to see she has come so far.
“She got up and was walking around and eating chips just like a normal kid. She and her parents have been so brave and have never given up and it seems like the people of Reading haven’t given up either, which is so lovely to see.”
Mr Saunders. 34, said: “Sunday’s fundraiser was amazing. Even though it was throwing it down with rain, everyone came inside and did their thing.
“Danyl came and chatted to us for ages and nearly everyone who has been involved in fundraising for us turned up. It was lovely to come back to.”
El Camino singer Beccy Kean, from Caversham, organised the event after hearing about the cause at Inglewood Day Nursery in Sonning attended by Amelia’s baby sister Charlotte and her own son George.
She said: “When I heard about Amelia it really broke my heart.
“I knew we would do a gig for free and started getting other bands together and everyone jumped on board.
“The pub was packed and the staff were running around all day long. I feel incredibly overwhelmed and very emotional about it because so many people gave their support.”
Brave Amelia had a message for her Facebook fans this week, as her dad uploaded a video of her thanking everyone for their support.
Visit www.ameliasmiracle.com for more information and to support the appeal.
Visit www.getwokingham.co.uk for a video of Amelia saying thank you to all her supporters.